Life with the Quirky Boys

Mom brings the estrogen to the party.

I Heart Rachel

Written By: Michelle - Apr• 17•13

Trigger warning: this post makes reference to the Newtown shooting. I wrote it on Sunday with the intention of posting it Monday, but held it back in the wake of the Boston Marathon bombing. We’re all still emotionally raw from both events. I don’t want to wait longer to post it, though, because the senate vote on the background check bill is scheduled for today. Unfortunately, it’s not a vote on the bill itself, but on whether or not to vote on the bill at all because Republican Senators are filibustering the vote. I want to post this before that happens. Not that I have any influence anywhere, but I think it will make me feel better to have said it out loud with all the force I can muster. 

It won’t come as a surprise to any of you that I adore Rachel Maddow. Yes, we share many political views, but I share political views with Lawrence O’Donnell without adoring him. Nothing against Lawrence O’Donnell, it’s just that Rachel is exceptional. She is intelligent, fair, well-researched, passionate, and superbly nerdy. She starts every interview by asking the guest if she got anything wrong in the introduction. She apologizes and makes a correction if she gets something wrong. She’s a policy wonk, but not in a condescending way, she’s just passionate about it and it comes through in her delivery. I think my favorite thing about her is that she somehow manages to be a political pundit, butting heads with the most entrenched, jaded, and cynical people Washington can cough up without becoming cynical herself. Not that she’s a pollyanna, she’s anything but, yet she goes on the air every weeknight attempting to raise the level of conversation to one that’s honest, intelligent, and factual. I think that’s admirable.

This post isn’t about my love for Rachel, though. Well, it isn’t all about that. The first segment of her show on Friday was dedicated to the gun control legislation that’s about to be debated in the senate this week. Even though I don’t agree with some of the things the Democrats took out of the bill (*cough*ban on assault weapons and high-capacity magazines*cough*), I am so proud of them for standing together to override the filibuster. Let the debate come. Stand up and tell us why universal background checks are a bad idea. Because criminals will still get guns? Okay, but they won’t be able to just walk up to a booth at a gun show and walk away with one no questions asked. That is a step in the right direction and if you’re going to vote against it, you need to offer up a better argument. And now you’re going to have to put it on the record.

Toward the end of the segment, Rachel interviewed Nicole Hockley, mother of one of the children murdered at Sandy Hook. Ms. Hockley was well-spoken and I’m so glad she and other Newtown family members will be in Washington this week to continue pressure on lawmakers. Here’s a clip of the segment. The interview portion begins at 8:44, in case you want to skip ahead.

I can see why Rachel would wonder where Ms. Hockley gets the strength to speak out and actively push for gun control legislation in the wake of her heartache. I think I understand it, though. It’s something to do. Something to keep her moving forward. Something to strive for that is valuable for out nation and, moreover, has the potential to bring meaning and import to her son’s death. Not that, as she said, it was worth the price, but she didn’t have a choice in that part. That’s true for all the Newtown families who are working together to push Washington out of the NRA’s pocket and toward meaningful gun control legislation. I admire them. And to Senator Inhoff’s assertion that the Sandy Hook families are being used, I say: make a real argument. You are the one marginalizing their real emotional pain for political purposes. Have you no shame?

At 2:35 in that segment, I learned a fact of which I had previously been unaware and it made me identify with Ms. Hockley even more than the other families. Ms. Hockley’s son, Dylan, was autistic. He was a six-year-old autistic boy in kindergarten, just like Zoo Keeper. At his memorial service, she spoke about Dylan being a hand flapper and about him telling her that he did it because he was a beautiful butterfly. I love that. My son BamBam’s repetitive motion is sort of a waving of his right arm coupled with a full-leg foot stomp. I hope one day he’ll tell me what it means to him. It makes my entire body freeze to think of never seeing him do it again.

Finding out that Dylan was autistic also leads me to wonder how the Hockleys felt about the media’s fascination with the unconfirmed assertion that the murderer was autistic. About their careless supposition that autism was a factor in his actions on December 14th. I hope they are unaware* of it; that they were at least spared that.

*I later found this article, which discusses their awareness of it in the last paragraph.

Personally, it makes me see red. Yes, autistic individuals can have violent outbursts. They don’t, however, make plans to go on killing sprees. If they do, it’s not the autism causing it. There are several reasons I can say that, but what it ultimately comes down to for me is empathy. You see, there’s a difference between cognitive empathy, where the individual can read the emotions of others, and affective empathy, where the individual actual feels the emotions. Sociopaths are expert at cognitive empathy and lack affective empathy, meaning they can fake it, but not feel it. Here’s an excerpt from an interview with Cambridge professor of psychology Simon Baron-Cohen that explains cognitive empathy better than I can:

Is it the case, then, that autistic people are not good at the “mind reading” part of empathy, in terms of predicting people’s behavior and feelings, while psychopaths are able to do that but are not able to care?

I think the contrast between these two conditions provides some evidence for that dissociation within empathy. People with psychopathy are very good at reading the minds of their victims. That’s probably most clearly seen in deception. You have to be good at mind reading before it would even occur to you want [to deceive someone]. So you can see the cognitive part of empathy as functioning very well, but the fact that they don’t have the appropriate emotional response to someone else’s state of mind, the feeling of wanting to alleviate distress if someone’s in pain, [that suggests that] the affective part of empathy is not functioning normally.

Autistic people, on the other hand, are generally proficient at affective empathy and deficient in cognitive empathy, meaning that they can care very much about the pain of another person, they just have difficulty recognizing it or shifting attention away from whatever they are hyper-focused on. In Zoo Keeper’s case, that would be the zoo.

I’ll give you two personal examples. A friend’s autistic son recently used an unacceptable word to his aide in school when he was upset. He got in a lot of trouble for it and didn’t understand why. To him, it was just a word he had heard on a video. When his mom explained the word to him he was so angry with himself for using it and for hurting his aide with it. That’s affective empathy.

Last year, the boys and I were tested for food allergies. The test was a finger prick. A deep, deep finger prick. I went first, and let me tell you, it was incredibly painful. Zoo Keeper went next. When he was done, he was adamant that his brother not do the test because he didn’t want BamBam to experience the pain. The doctor said he had never seen a sibling react that way; usually there is an I-got-mine-now-you-need-to-get-yours attitude. Not my Zoo Keeper. He felt the pain and he wanted to spare his little brother. That’s empathy.

I’ve seen arguments that the media was not saying that autism was responsible for the murderer’s rampage at Sandy Hook, merely that being autistic would have informed his life experience. So, the media’s response shouldn’t be seen as offensive, but as a teachable moment. Because I think some of the media was asserting autism as the cause, and I’ve already addressed that, I’ll put aside the first part and just address the second. In that case, it very well could have been a teachable moment. The problem, then, is that the media didn’t use it to teach anything. After a tragedy like Sandy Hook, people are looking for a reason. They want something to help them make sense of something that’s never going to make sense. More than someone to blame, they want something to blame. Knowing the identity of the murderer isn’t enough; people want to know why it happened so that they can make sure it doesn’t happen to them. When the media alleges that the murderer had an autism spectrum disorder, but doesn’t bother to put that in any sort of context or explain anything about autism, that makes autism a lightening rod for fear. And that fear isn’t attached to an abstract concept of a neurological disorder, it’s attached to real people who have autism. And it sets the treatment of people with disabilities in our society back decades. That’s not empathetic. It’s irresponsible.

This new-to-me fact about Dylan Hockley’s autism and the mainstream media’s apparent ignorance of it, their ignorance about autism in general, makes me appreciate Rachel Maddow all the more. Because Rachel doesn’t report on things she doesn’t understand. She doesn’t make assertions without the facts to back them up. And, if she gets the facts wrong, she corrects them on air and apologizes for the mistake. That’s called integrity and it’s an unfortunately rare thing of beauty. The rest of the “news” media, political or no, could take a lesson in true journalism from Rachel Maddow. I wish they would.

They Really Like Me!

Written By: Michelle - Mar• 18•13

Hello, lovely denizens of the Quirkyverse. My friend, Megan, has nominated me for an award. I told her, I’ve never been nominated for anything, but just realized that’s not true. I won an award in high school. But I’ve never been nominated for writing. I’m pretty sure that’s true.

Megan nominated me for the Liebster Award. Queue Logo:

liebster-blog1

Here are the rules I must follow to accept the award:

1. You must tell 11 things about yourself.
2. Answer the questions your nominator gives you.
3. Create 11 questions for the bloggers you nominate.
4. Choose new blogs with fewer than 200 followers and link them to your post.
5. If you’re nominated, please leave a comment on this post with the URL of your Liebster Award post.

I already messed up #5 because I misread it and left a comment with my general blog url, but I’ll rectify that as soon as I get this posted by leaving a shorlink in her comments section.

The first two requirements are generally lumped together, meaning that the nominee tells 11 things about her(or him)self by answering the questions given by the nominator. I really liked the questions Megan was given, though, so I’ve decided to separate the requirements by answering those as well as Megan’s fabulous questions.

Questions given to Megan:
1. What is your preferred beverage? Sweet tea, especially if it includes either fresh pineapple or mint.
2. Are you afraid of any animals? Cats. And snakes, but mostly cats.
3. Would you ever go hang-gliding? Absolutely. I’ve been bungee jumping and that was fun. Parasailing was kind of boring, but I think hang-gliding would be kind of in-between. And fun.
4. Country, city, or suburbs? I’m a suburbs girl. The city is too crowded for an introverted girl who likes grass and trees as much as I do. I like the idea of the country, but it’s too far from a movie theater for my taste, so I’ll just dream of a big back yard.
5. What is the easiest way to make you laugh? Hmmm, that’s a toughie. Probably by using a line from a movie out of the blue in a normal conversation. Or, as Megan said, tell me a funny story. I’m relatively new to Modern Family and haven’t seen “The Old Wagon” episode yet, so I’ll have to check that out.
6. Do you enjoy a good cry? Yes. Whatever the reason for the cry, I find the physical release of the emotion really cathartic. Not a big fan of the puffy, red eyes, though. They run in my family, so thanks a lot, Mom.
7. Are you multi-lingual? No, but I know enough Spanish to tell you to shut up if I think you’re talking about me.
8. How often do you read for pleasure? I try to take a little time to read for pleasure every day. It’s my one sure-fire escape from my everyday life and it helps keep me sane. You know, relatively speaking.
9. Can you do anything crafty (sewing, knitting, woodwork, etc.)? I’m a sampler. I can cross stitch, make potholders, hook rugs, sew, knit, stamp metal, emboss paper, and probably some other things I’m forgetting. I generally pick something up long enough to complete a project, then move on to the next thing.
10. What was the worst thing you’ve ever tried? Snowboarding. I fell almost instantly and I don’t think I was ever able to make it back to a standing position on a snowboard. On the bright side, it was then I had a revelation that I need independent movement of my legs to move. ‘Swhy I can roller-skate pretty well, but I can’t skateboard to save my life. Now that I think about it, that high kick while roller-skating to a Barry Manilow song in the garage circa 1978 was not such a hot idea either.
11. Johnny Depp or Sam Elliot? Johnny Depp.

And here are Megan’s questions:

1. What is your favorite sport? Is reading a sport? No? Okay, well, then I guess it would have to be volleyball. It’s the only one I’ve ever really been able to play. Or totally follow.
2. What did you want to be when you grew up? I can’t remember ever wanting to be anything but a doctor or an actress/singer. I did musicals in high school and realized my singing abilities might be sufficient for the chorus, but my acting abilities would probably not even gain me amateur status. College physics beat the doctor dream out of me.
3. Modern or antique? Depends on the period, but I lean toward antique.
4. Do you have a favorite band or music genre? In high school, I would have answered Billy Joel or Manhattan Transfer. Later it might have been Bare Naked Ladies, They Might Be Giants, Dave Matthews Band, or Linda Eder. Aretha. Ella. With a very few exceptions, I’ve never been a fan of Country Music. Never Death Metal, but anything else is pretty much fair game.
5. What do you want to be doing ten years from now? Writing books and remaining calm while teaching a certain 16-year-old wanna-be zoo-keeper to drive.
6. If you could choose, during what era would you live? I think early 20th century. Sometime where I could be involved in fighting for suffrage and civil rights.
7. D.I.Y or contractor? D.I.Y. baby! Unless it’s hard or will take more than a few hours, then totally contractor.
8. What is your favorite vacation spot? Hapuna Beach, Hawaii. Of course, I’ve only really been on two vacations in my life. There are lots of places I’d like to try.
9. Can you roll your tongue? Yep. That’s a dominant inherited trait, did you know?
10. Have you ever dyed your hair, and if so what was your favorite color? My hair color is something I’ve always liked about myself, so I’ve never done anything long-term more than subtle highlights. I did a hairspray one Halloween that was an orangey-red that looked awful on me. I think I would probably go with a deep purple or blue.
11. Do you believe in fate? I’m not sure. I believe that, while random things sometimes happen, the universe mainly unfolds in predictable patterns. Some would call that fate, so…maybe?

Now that I’m positive you know more about me than you ever wanted to, I give you the questions to my nominees:

1. If you could spend an afternoon with anybody, living; deceased (though not deceased on your imaginary afternoon); or fictional, who would it be and why?
2. You get to have your mother make your favorite meal for dinner tonight. What do you want to see on that table?
3. If someone walked in your house right now, what’s the most embarrassing thing they would learn about you?
4. What is the one thing about yourself you like the best?
5. If you had to leave your house right now and never return, what one material possession would you take with you?
6. What task do you totally hate doing?
7. What are you afraid of?
8. Which are your favorite smells?
9. If you could start your own restaurant, what would it be?
10. If you could get back any article of clothing you once wore, what would it be and why?
11. Tell me about someone you envy.

And now for my nominees (don’t click here for a drumroll because I couldn’t make it work):

Kimberly, Mimi, and Sarah

Promote the General Welfare

Written By: Michelle - Feb• 26•13

It’s been a while since I’ve been here. I know I said I would be posting about my tangential musings following Sandy Lake, and I still plan to do that, but there have been some disruptions in the Quirkyverse that have absorbed my thoughts these last few months. I won’t write about them here, haven’t written about them at all, actually. Not because I’m unaffected, not at all, but because they are not my issues to write about. There’s not even anything I can do about them except support my loved ones as best I can. They have been my focus for 2013 so far and will continue to be for a while, I’m sure.

That said, I need to start writing again. If I don’t, I may implode with the weight of the words. I’m out of practice and they’re kind of pent up in there, so they could trickle out slowly and painfully, as they’re doing this moment, or they could just start spewing out with force at any time. I’m afraid that either will hurt, but it’s a necessary first step. And now I feel the need to apologize for the thinly veiled colon analogy. Sorry.

Sparky, wonderful man that he is, encouraged me to take time away at a hotel this weekend. I did and it was lovely. I did not, however, spend that time writing as I had planned. Instead, I read, napped, and watched some TV. As I said, it was lovely. At first I felt guilty for not writing, but then I wrestled that to the floor and threw it out the window. I needed to loosen my internal system before I could write. I could go on, but already feel myself slipping back into the colon analogy, so suffice it to say that I don’t feel guilty anymore.

Now it’s Sunday and I’m sitting here in the library wondering how to untangle my thoughts and determine which thread to lay down here. I keep coming back to the movie I watched last night: Schindler’s List. I went with a friend when it first came out in theaters. As I recall, we were late and the line was long and we ended up missing the first ten minutes, so we started at a disadvantage. I was in my early twenties and had seen my fair share of horror films, so it hadn’t occurred to me that the death in this movie would bother me. I was so naïve. I’m pretty sure I surprised my friend when, about two hours in, I leaned over to her and said, “If they kill one more kid, I’m leaving. I’ll meet you out in the hall whenever you’re ready.” A few minutes later, I was sitting outside that theater with my back against the carpeted wall. My friend joined me not long after and we left.

I had been told by many people that we left just before the good part and that I should go back and watch it. I’ve thought about doing that many times over the past 20 years, but could never bring myself to do it. Until last night. And last night, I watched it all the way through. It was windy and the cable cut out a few times in the middle, so I may have missed some of the violence I saw the first time around. That’s okay. I figured out a while ago that it was never the violence itself that bothered me.

No, what bothered me was the ability of a group of people to deny the humanity of another group of people. To believe that they were so other as to not be human at all. At 24, I knew the history of the holocaust, but it’s one thing to know it on an intellectual level and another entirely to watch it unfold on a screen in front of you. I wasn’t ready for that; was simply incapable of processing it on an emotional level. So I walked out.

At 24, I wasn’t ready to accept that marginalization on this level had been so very real. Or so very close in time or vicinity. I wasn’t ready to let go of my belief that, although it had happened, we had learned from it and it could never happen again.

At 44, though I don’t think I will ever understand the thought process involved, I realize that it’s never really stopped happening. Cambodia. Bosnia. Rwanda. Darfur. Still, those places are so far away. Nothing like that could ever happen here. Right?

I’m sure many Germans felt that way in the 1930s. Germany was recovering from a war and economic times were hard. Sound familiar? Hold that thought a minute.

I also recently saw the musical movie of Les Miserables. There were things I liked about the movie and things I didn’t, but what struck me most was the level of reality they were able to achieve onscreen. I know the story is fictional, where Schindler’s List is based on actual events, but both movies were able to make me experience the story as if I were actually there. I also think the larger societal themes in Les Miserables are probably not far from the reality of the time. And I was stunned by the similarity between 19th century France and 21st century America. And, sadly, early 20th century Germany.

I saw a tendency to view a population of people as something less than human. In Les Miserable, it’s the poor. In Schindler’s List, it’s the Jews. In Nazi Germany, it was actually Jews, homosexuals, immigrants, the poor, the unemployed, and many other groups. In 18th and 19th century America, it was the black slaves. In 21st century America, we’re back to the poor. Not that the poor were ever out of it, we just sometimes focus on other populations as well. And for the last thirty years or so, we’ve been adopting policies designed to wipe out the middle class, thus making a few rich people mega rich, while exponentially expanding the size of our population of poor people.

Which brings me around to the Preamble of our very own Constitution. Come on, those of you old enough to have grown up with School House Rock can sing it with me:

We the People, in Order to form a more perfect Union, establish Justice, ensure domestic Tranquility, provide for the common defense, promote the general Welfare, and secure the Blessings of Liberty to ourselves and our Posterity, do ordain and establish this constitution for the United States of America.

I want to focus on the part about promoting the general welfare. Now, I’m no constitutional scholar and I know there’s debate as to the legal meaning of this clause, both in the Preamble and the one in the Taxing and Spending Clause, but I’m not going to address that. I’m not concerned with what it means legally or the kind of power it confers on the government. What I’m concerned with is what it means for citizens of the US.

I know that the founding fathers didn’t write this clause with me in mind. Or you, for that matter, unless you are a rich, white man. But the truly beautiful thing about our Constitution is its ability to change with us. And, so, I believe that it now applies to you and me; to all people living in the US.

But what does it mean to promote the general welfare? I can only tell you what I think it means. I think it means we have a responsibility to take care of each other. To ensure that every member of our society has his or her basic needs met. Not that I think every last person should be given the keys to the city without making a contribution of his or her own, just that I think no parent should have to choose between feeding a child or taking that child to the doctor because they don’t have enough money for both. And I think that, when you are successful, it’s your responsibility to help the society as a whole function. The more successful you are, the greater your responsibility to do this. More than just your responsibility, it’s in your best interest to support the infrastructure of the country, including its workers. It’s important for all of us that we have safe roads and sturdy bridges. That we have clean water and fresh air. That we have healthy people who can go to work, earn a living wage, and go on to buy our products. I’m not saying that there aren’t people out there scamming Medicare or the welfare system or that those systems don’t need to be retooled. What I’m saying is that’s not a good reason to do away with the system or to cut it to the bone. Those programs are components of our safety net and we need that net to catch as many people as possible. As many humans as possible.

Now that we’re at the end of two wars with a struggling economy and a crumbling infrastructure, we should pull together to build this country back up. But the policies I hear from the mouths of Boehnor, Cantor, McConnell, Ryan, etc. are invariably about making sure that certain populations are denied rights like marriage and basic healthcare or they are about benefitting big business (e.g. guns and oil) at the expense of the people of this country.

I don’t agree with everything Obama endorses. Drones and fracking, for instance. And there have always been politicians like Boehnor et al around. But it seems different to me now. It seems like they’re shouting louder and louder and there don’t seem to be many reasonable voices out there to counteract them. I hear Marco Rubio talking about how his parents benefitted from Medicare and he went to school on government funds, but somehow those opportunities have nothing to do with his success and should not be available to anyone else. They don’t deserve it. They should just pull up their bootstraps and try harder. I know that’s not the exact text of what he said, but it is exactly what he said. And the only thing I hear anyone say about it concerns his awkward drink of water. If it hadn’t been for his sudden thirst, would we even talk about his speech at all? Where are the voices to call out the hypocrisy? And by hypocrisy, I mean his assertion that he’s still awesome even though he accepted the government’s help, while anyone outside his family who cannot manage to get by without government assistance is just lazy and unworthy. Those people are they and they are not part of us. They are less than us.

Oh, don’t get me wrong. Mr. Rubio is a patriot. Mr. Rubio and his collegues believe whole heartedly in American exceptionalism. It’s just that the lazy souls who need government assistace are unworthy of that label. They are not part of us.

Same goes for homosexuals. If they were allowed to marry, they might get the idea that they are equal to us. That would destroy the very fabric of our society because they are not part of us.

Same for illegal immigrants. They come here and take our jobs. We cannot allow them a path to citizenship because they are not part of us.

They are the poor, the homosexual, the immigrant. Do those groups sound familiar? They are not part of us. They are less than us. Mr. Rubio and his colleagues have not gone so far as to imply that they are less than human. Not yet.

It’s more than just politicians and pundits, though. I hear regular people espouse these views that come directly from the right wing talking points. When you try to discuss it, they shout you down with irrelevant arguments or “facts” they’ve gotten from Fox News because “it’s the only news source that tells the truth.” Some shrug off confrontation with facts by saying you can find facts to support any viewpoint. No, you really can’t. You can find something on the internet to support any viewpoint, I’ll give you that, but being on the internet doesn’t make it a fact. I’m headed off topic again, so I’ll pull back before I start explaining what a fact is.

Here’s an example of something I hear from people I know: “I don’t want my taxes paying for some lazy woman to sit around the house having more kids.” I’m paraphrasing, of course, but those kind of statements scare the shit out of me. They smack of misunderstanding of poverty and perceived moral superiority. They are in line with the feeling of American exceptionalism and superiority that is pervasive in our society. They sound, to me, like precursors to statements where the person speaking does not acknowledge the humanity of the group he/she is speaking about. And I don’t like where that leads.

The more you can increase fear of drugs and crime, welfare mothers, immigrants and aliens, the more you control all the people. ~Noam Chomsky

The Unthinkable

Written By: Michelle - Jan• 07•13

I’ve started this at least 20 times since the horrific events at Sandy Hook Elementary School on December 17th. Each time I dance around what I actually want to say and then fly off on a tangential rant. Don’t get me wrong; the rants are all relevant. They’re about guns or mental health services or profiling or autism. I believe everything I’ve said in each one and I will post them here, but I need to acknowledge that they also represent me wandering away from my horror at the senseless tragedy into areas where I’m much more comfortable expressing my emotions.

Because I have a six-year-old son who started kindergarten in public school this year. When I think about those scared little kids at Sandy Hook, those terrified little babies, I freeze up inside. I can feel the heat rising from the pit of my stomach, but I take my feet and stomp it back down until it’s molded into the lining. I simply cannot allow it to rise because it will thaw my emotions and all of the ‘what ifs’ will come flooding in with the rising tide. Maybe I’ll eventually be able to handle it, but at this point in my life I have no doubt that I will drown in those emotional waters.

So, for now, I will stick to making rational arguments about guns and mental health services and profiling and autism. I’ll post them here and you all can say whatever you want in the comments, provided you say it respectfully. I encourage a good, well-thought-out argument, but I’ve seen enough dismissal for a lifetime. Enough stubbornness and misplaced avarice. Trolls beware; I am in no mood to be trifled with.

For today, I will leave you with this article naming each of the dead in the December rampage. I wish peace and healing for each of their families and loved ones. I have no idea how to achieve it, but I’m wishing it so hard I can feel it vibrating out from the tips of my fingers.

Attacking the Thyroid

Written By: Michelle - Jan• 03•13

Remember the diet I was on back in October? It’s called The Whole 30 and it really works. The problem is that it’s difficult to stick to – cuts out all grains and grain-like seeds (like corn and quinoa), dairy, legumes (including peanuts), sugar (even artificial or “natural” like stevia), and oils other than olive and coconut. I did very well; lost almost 20 pounds and a pants size in the first three weeks, all with no exercise. The food was delicious and I did not cheat…until the end of the three weeks. That’s when both boys were home sick from school for two days. Home because they each threw up, but neither was sick enough to dampen his energy one tiny bit. At the end of that second day home with them, I was making gluten-free chicken nuggets and I stuck one in my mouth. I hadn’t had a chance to fix anything for myself to eat and I just kind of cracked. It went downhill from there and the only good news is that I’ve gained less than five pounds back in the two-plus months since. I’m still wearing the smaller pants, though just barely.

I heard about the diet from a friend who tried it hoping it would relieve some GI issues. She had great results. I have GI issues as well, but I chose the diet because I was afraid I had developed diabetes. I had gestational diabetes when I was pregnant with BamBam and experienced some hypoglycemic episodes then, but they stopped after he was born. Unfortunately for me, they started again last May. Around the same time, I started having hot flashes. The two explanations for those symptoms that I could think of were diabetes and menopause. I figured the diet couldn’t hurt either way.

The diet also purported to help with various autoimmune diseases, none of which I thought applied to me, and chronic systemic inflammation, which TOTALLY applied to me. I’ll come back to all of that, though.

So, I stopped the diet in early November. In mid-November, after a talk with BamBam’s teachers and some of his therapists, I decided to allow the boys to have some gluten again – they’d been off it since August. It doesn’t seem to affect their behavior, and there seems to be a threshold under which it doesn’t affect their GI systems either. In early December, two friends who have hypothyroid disorders told me separately that they think I have a type of hypothyroidism called Hashimoto’s disease. Furthermore, one of them, who knows me really well, told me the reason she thinks I have it is that I remind her of her before she was treated.

Now, my therapist has been telling me to have my thyroid checked for a couple of years. And I have. Up to that point, I’d had it checked four times in the last three years. All of those tests were within the normal range given by the labs doing the testing. When I told that to my friend, they told me there was a controversy about what ranges to use and that the labs generally went with the wider ranges. So I began to research it and found that she was absolutely right.

More than that, I realized that the symptoms that led me to start the Whole 30 diet could be explained by Hashimoto’s disease. And that Hashimoto’s is an autoimmune disorder. Remember how I said the diet I was on is supposed to address the symptoms of autoimmune disorders? Turns out Hashimoto’s is listed among them in that book. So, another reason to go on the diet. Actually, it’s more a way of eating than a diet.

I called my doctor’s office and asked for a referral to an endocrinologist to discuss possible thyroid issues. I threw in diabetes in case my doc was unwilling to make the referral, but I’m not sure the office even asked her about it. I called the place they referred me to and made an appointment. It was for January 3rd, my birthday, which was almost a month away at the time. Also, our insurance was set to change with the new year, so I called another place to see if I could get in sooner, but the soonest they had was February.

About a week later, I realized I was limiting myself by only checking practitioners close to me. A bigger clinic, one in, say, Seattle, might be able to get me in sooner. So I called the one where both my friends are seen. They had one doctor with a few appointments available on December 26th and 27th. Perfect, I thought. It wasn’t the doctor either of my friends see (I asked them later), but same clinic and who was I to be picky? I told them I’d take it. They told me to hold on because they couldn’t make an appointment until they had a referral from my doctor. No problem, I said, I’ll call them right now.

And I did. I told the staff I needed another referral for hypothyroid sent to this other doctor. They were a little put out, but said they’d do it. The guy asked what my symptoms were and I think this is where I made my mistake. I said something like, “I don’t know, whatever was on the other one…fatigue.” But the guy said he would send it. Actually, he said he’d have the clinic send it. You see, I go to a satellite clinic of a larger organization, so they have a central office that handles stuff like this by telling the satellites to do it. I’ve thought many times about changing doctors, but I really like the fact that they have my test results online where I can look at them myself and that I can email my doctor directly and make appointments online. I’ll put up with a lot of crap for good technology.

I called the Seattle endo place back the next day, but they hadn’t received the referral yet. I called again a few days later and it still wasn’t there. So, I called my doctor’s bureaucrats and was told that it was marked pending, but that she couldn’t see why and would tell the clinic to fax the referral right away.

I called the Seattle endo office again a few days later and still no referral. I called my doctor’s bureaucrats again and was told by yet another person that it was pending. Pending what? Pending verification of insurance. Here’s how the rest of that conversation went, with me getting more steamed by the nanosecond:

    Me: Why do you need to verify my insurance for a referral?
    Phone Bureaucrat: Well, we need to make sure it’s covered by your insurance policy.
    Me: Yeah, I understand why you verify insurance in general, but why do you need to verify it for me to see an outside doctor? You’re just doing the referral, not the service.
    PhB: Yes, but we need to verify that your insurance will pay for it.
    Me: But this is the doctor that I want to see and I’m willing to pay out of pocket for the visit even if my insurance company doesn’t pay. I just need the referral before they’ll see me. I need the referral before they’ll even let me make the appointment.
    FB: Well, we just need to verify that insurance will pay for it.
    Me: The payment won’t be coming to you guys anyway, so why the fuck do you care?
    Poor FB: I’ll have my supervisor call you back.

You’ve probably already guessed that I never heard back from his supervisor. I did call the Seattle endo office back an hour later and VOILA! My referral had magically arrived. What they did not have were any records on me. No labs and no chart notes, which they needed before they would make the appointment. No problem, said I, I can email the labs to you right now. But they only have ability for fax. Which meant I was going to Kinko’s to spend upwards of $20 to fax them my labs because faxing no longer works with our home phone service. So I trekked out to Kinko’s that afternoon and plunked down my credit card to send them my labs.

And didn’t hear from them for a week, when I broke down and called them. And they still wouldn’t make an appointment for me. Because the lovely people at my doctor’s office had listed fatigue as my only symptom. And my labs show that my thyroid hormones are within the normal range. I argued with them about the validity of those ranges, but they wouldn’t budge. They gave me two options to get an appointment:
Option 1: Have my doctor call the endocrinologist on Monday (December 24th, by the way) to make the case for evaluating me for a hypothyroid disorder. My doctor. The one who has been telling me for three years that my thyroid function is fine and I should just lose weight. Yeah, that’s gonna happen.
Option 2: Have my thyroid levels tested again and send them in. If they were outside the normal range, I could make an appointment with the endocrinologist.

So much for getting in to an endocrinologist before the end of the year. But I did take their advice and got the thyroid tests done again. I already had orders on file for a glucose and lipid panel, so I asked to add the thyroid tests on to those. And I just kept the appointment on the third with the endocrinologist who is closer to me and allowed me to make an appointment the first time I asked for one. And I have resisted the nearly overpowering impulse to write a letter to the Seattle endocrinologist demanding he remove the following statement from his web bio:

    “I strive to empower my patients to be active participants in their health care. By thoroughly explaining medical problems and treatment options, my goal is to educate and engage each individual in the decision-making process.”

I’d call that false advertising.

I found my thyroid tests disappointing. They were still within the standard range. Worse, my TSH was actually lower. Or I thought it was worse, until I looked at the functional ranges given in a book recommended by one of my friends called Why Do I Still Have Thyroid Symptoms When My Lab Tests Are Normal? by Datis Kharrazian, DHSc, DC, MS. According to that book, the pattern of TSH levels in Hashimoto’s is all over the map, so at any time it can be in, above, or below the standard range. What’s more, my Free T4 and Free T3 levels along with my TSH fit perfectly with the pattern listed for hypothyroid secondary to the pituitary gland. I printed out those pages to take with me to my appointment so I could use them to fight for an antibody test (the definitive test for Hashimoto’s) if I needed to.

That appointment was this morning. The endocrinologist was not very impressed with my TSH levels, though she did note that my T4 levels were consistently straddling the low number of the standard range. She was, however, very concerned about my glucose levels and, especially, my cholesterol. So, I got the standard lecture about diet and exercise and an admonishment to take my cholesterol medications (I stopped taking them while I was on the diet). I endured and promised I would (that was my plan anyway) and that I would figure out a way to exercise around my plantar fasciitis. My glucose levels aren’t high enough to make me a diabetic, thanks in part, I think, to my three weeks without sugar, but my fasting blood glucose is consistently over 100, so she prescribed a medication that’s supposed to help with that. And she ordered the antibody tests for Hashimoto’s. I didn’t even have to pull out my research. She told me I could wait and do the antibody test in six weeks when I have my cholesterol and glucose checked if I didn’t want to have my blood drawn twice. She obviously doesn’t know me at all. I drove straight to the phlebotomist from her office. The results should be in by Monday. I just wish her office had the technology to put them online.

Insomnia and fatigue are two of the symptoms of Hashimoto’s thyroiditis and I have both in spades right now. So, if this post is a little flatter than my usual stuff, I’m totally blaming it on that.

Categorization

Written By: Michelle - Dec• 09•12

I’ve had an item on my to do list for a while now about creating an autism primer tab for the blog. Sort of an autism 101 with information about the diagnosis and other technical stuff. The idea came about because, early on after the boys’ diagnosis, I used to get caught up in the technicalities of the jargon. I know that must come as a shock to you all, that my deep seated combination of literary and science nerdery would lead me to get bogged down in the language surrounding categorization. Go figure.

It used to drive me bat-shit crazy to hear something like, “Oh, no, he couldn’t be autistic. His eye contact is too good.” Or “He has Asperger’s? Well, at least he’s not autistic.” Those of you who are long-time readers of this blog may recognize the first one as something BamBam’s dentist actually said to me during his first exam. I can relay with great satisfaction that it was not something the man even thought to say in the second exam. As neither of my children is currently classified as having Asperger’s, the second is something I have overheard, but has not been said directly to me.

It’s the inaccuracy of the statements that gets to me. A diagnosis of Asperger’s means a person is autistic. Because Asperger’s sits firmly on the autism spectrum. That’s pretty much all it means except that he didn’t have a language delay. I suspect what the speaker really meant, though, was that a diagnosis of Asperger’s means he’s swimming in the shallow end of the spectrum, the end closest to his neurotypical peers. But that’s not what it means. Because autism is not a linear spectrum with Asperger’s at the high-functioning end.

The DSM IV (Diagnostic and Statistical Manual of Mental Disorders – don’t even get me started on why autism is diagnosed via a manual for mental disorders) has a list of symptoms divvied up between categories. If you only hit one of the symptoms listed, you fall within PDD-NOS or Pervasive Developmental Delay Not Otherwise Specified. If you hit three of the symptoms with a certain pattern of categories (such as two from category 1 and at least one from category 2) and you didn’t have a speech delay, you have Asperger’s syndrome. If you hit six or more of the symptoms, regardless of speech delay status, you have classic autistic disorder. That’s an oversimplification, of course, but I put it this way to illustrate a point: nowhere in the definition does it specify the severity of the symptoms. So you can meet someone with classic autistic disorder who is able to manage his symptoms, all six or more of them, fairly well. And you can meet someone with PDD-NOS whose one symptom is debilitatingly severe. Which one is better off? I don’t know. And neither does my dentist, so he should shut the hell up.

I’ve been thinking about this so long that it’s almost time for the new guidelines to come out. You see, in May 2013, they’re doing away with the different categories on the spectrum and it will just be the autism spectrum. There is much uproar within the community about it, lots of unhappy people at losing the Asperger’s designation in particular, but I’ve actually been kind of excited about it. It feels freeing to me. That may be because I’m a word/science/categorization wonk or because I’m a parent of children who are classified as having autistic disorder anyway, so I’m not losing their designation. Or it could be that I don’t think the designation of Asperger’s will go away no matter what the DSM V criteria says or what is listed in an individual’s diagnosis. There’s no mention of high-functioning in the DSM IV criteria, but that term is still going strong.

A friend recently introduced me to a wonderful blog through this post. So, from now on, my kids are just spectrumy. Check is in the mail, Lisa and Erica. :)

 

Celebrating Change

Written By: Michelle - Dec• 02•12

Thanks for all the support on the last post. I’m okay – it helped a lot to write it out. That always helps, it’s just not always easy to make myself do it. I’m having trouble getting the words to flow today, too, even though my topic is special and wonderful. It’s BamBam.

BamBam had his four-year-old well child check-up on Friday. As Dr. fabulous walked in the door, BamBam held out a Cookie Monster card to him and said something about Cookie Monster being blue (I really don’t remember what he said). Dr. Fabulous looked at me and said, “I think that is more than he’s said in all our other visits combined.”

Dr. Fabulous asked about imaginative play just as BamBam leaned into me, pretending I was a cookie and he, Cookie Monster, was going to eat me. Dr. Fabulous said, “Oh. Never mind. That beautifully demonstrated exactly what I was asking about. ”

Dr. Fabulous asked about BamBam’s school situation and his interest in other kids. I told him about developmental preschool. Then I told him that the previous week we’d had BamBam’s first birthday party where he had his own friends to invite. We invited his whole preschool class, plus a few other friends. I told him how BamBam greeted every single guest by name as they walked in the door and invited them to come play. It was amazing.

Basically, Dr. Fabulous was over the moon about the progress BamBam has made in the past year. I was surprised by his amazement because, until I was standing there telling the doctor about it, I had forgotten how far BamBam has come. I had forgotten that only a year ago he didn’t really acknowledge that other kids existed. I had forgotten the constant screaming. I had forgotten the effort and persistence it took just to get him to go into the school building or the grocery store. I had forgotten.

BamBam still has issues. Of course he does. Even if he wasn’t autistic, which he certainly is, he’s still four. But I had forgotten how far he’s come. It felt so good to see BamBam through the eyes of someone who hadn’t seen him in a year. To watch Dr. Fabulous take in all that growth at once.

Dr. Fabulous sang the praises of early intervention and he’s right to do that. It is really working for BamBam. His teachers and therapists are skillful and they truly care about the growth of their clients. I don’t want to sell them short here because they’re wonderful and really go the extra mile, but this post isn’t about them. This post is about BamBam. He’s had help to make great strides this year, but the lion’s share of work was on him. And he totally rose to the challenge. The kid is amazing in the way he embraces life and runs with it. I often say he has two speeds: full-steam and asleep. I’m pretty sure he’s going to take over the world someday.

BamBam is a remarkable person and he’s worked so very hard this year. I’m so very proud of him and I want to take this time to celebrate BamBam. You’re awesome, kid, and I love you.

Depression

Written By: Michelle - Nov• 18•12

I’m sitting here trying to figure out where I went wrong. A month ago I started this great new diet. The food was good, it helped me feel better, and I lost almost 20 pounds in three weeks. Three weeks ago I started writing on my novel and I was tearing it up in the best way. I wrote almost seven thousand words in four days. I made it through Halloween with all the candy and BamBam disappearing in the dark street for a few minutes. We found him and everything was fine. I was fine.

Then the boys got sick. And I stopped writing. And I faltered on the diet. And I forgot to take my anti-depressant for three days (not consecutive, but still). And I had a fight with a close friend on Facebook that it turns out she didn’t even know we were having. And I had a nervous breakdown in front of our ABA program manager. And I smell like cigarettes, but I don’t even smoke and that’s making me crazy. And if I have to have another fucking conversation about a zoo my head is going to explode. And I keep allowing myself to become hypoglycemic and shaky. And I don’t want to write anything, anything at all. And I don’t want to read anything, either, which is what made me realize how depressed I really am.

A woman I know had surgery to remove a brain tumor on Tuesday. She’s been such a trooper and I’m amazed. She has such a great attitude and I’m falling apart. I’m falling apart and I have nothing real to complain about.

I have a wonderful, supportive husband. Our boys are both doing really well in school and in therapy. I now have time to myself without requiring a babysitter or even my husband to watch the kids. I have fabulous and supportive friends both in person and online.

Yet I’m depressed and frozen in place. It’s such a first world problem, right? I’m the one standing in my own way and I can’t figure out how to make me move my ass. Maybe I need a tiger to chase me. I was kidding about that, but it’s actually kind of true. I’m really good in a crisis. I’m very levelheaded and on task. I hate every second of it, but I get things done. For other people. But I freeze solid when I’m the one who needs something. Because I’m only comfortable on the back burner. My issues can wait. They always can.

Except now they are getting in the way of front burner issues. Like potty training. I realized during my meltdown with our ABA PM that I’m part of the problem there. I’m resisting being consistent about making Zoo Keeper go. Actually about making him wear underwear instead of pull-ups at home and making him try to go. Because it’s a fight every damn time and I’m tired of fighting.

Part of what he needs is to alleviate his constipation. We’ve done that several times by using Miralax in apple juice. But I’ve stopped making him do that because every fucking sip is an all out war and I’m not up to the fight.

His constipation would probably improve if his diet were better. I might even be able to muster the energy to fight that battle, but I would certainly lose at this point because I would have to fight it with his brother as well and god knows I’m not up for that. I’m also not up for the fight it would take to get them to take supplements. I found liquid calcium and B vitamins because BamBam won’t eat the gummy kind. Or the chalky kind. Or the liquid kind, as it turns out. I could hold him down and force it down his throat, but I’m not up for that every day either.

And, so, my sons will likely be malnourished into their teens unless I muster the strength to engage in a daily fight with them in the next few years. But I can’t even seem to fix my own diet for any reasonable length of time, so who am I to tell them how to eat anyway. I know, I know. I’m their mother and it’s my responsibility to do it. I just don’t know how. Or, rather, I know how, but I’m at a loss as to how to make myself do it.

Those are the major battles, but there are others as well. Zoo Keeper comes out of school every day raring for a fight. I get it; he’s had to hold himself together at school all day and he needs an outlet for that energy, so he spews it at me. But that takes a toll. As does his reluctance to do anything for himself. Like buckle his own seatbelt. Or put away his shoes. Or take his underwear upstairs to put in the hamper. I know it’s completely run of the mill to struggle with the underwear in the hamper thing, but at least they’d be in his room instead of the middle of the floor just inside the front door because he sheds them in favor of a pull-up as soon as he’s in the house. And there are toys on the floor all over the house. Sometimes I fight that one, but it always wears me down. And there are zoos on every flat surface. We try to restrict him to certain areas and that works for a while sometimes. But then they start to move to chairs and couches and eventually walkways and stairs and I just tire of the sound of my own voice in the argument.

And then there are the battles I’ve been fighting that were apparently pointless. I’ve been cutting the boys’ hair for more than three years. They fight me every damn time, which is why I generally allow their hair to grow much longer than I’d like. They scream and they squirm and they make it so hard. So very hard. And they end up with uneven hair that looks…well, like their deranged mother cut it. But I’m okay with that, except that I wanted their hair to look nice for family pictures we had taken a few weeks ago. So I asked friends for suggestions and then took them to a woman who specializes in cutting hair for kids with sensory issues. They both jumped up into the chair like pros and hardly moved as she snipped and buzzed their hair away and I looked on in astonishment. Zoo Keeper even let her wash his hair, which is a battle I assigned to Sparky long ago. So, apparently I’ve been beating my head against the wall every month or so for the last 36 months for NO REASON.

And those are just the battles I fight with the kids. What about me? What about my own health? I’m pretty sure I’m at least on the precipice of diabetes, so what about my own diet? I know what I need to do. I read the (recent diet) book; the science is sound and, what’s more, the diet worked. It made me feel better. I did feel better. But it takes a lot to cook good food on a regular basis and that’s energy I’m already lacking. And then there’s the fact that sugar is soothing. It just is. And my nerves are frayed, dude. I need a lot of soothing. I know it’s bad for me and my body feels better without it and there are a million reasons to resist it, but it’s a drug and I’m addicted to it. It’s hard to continually fight that battle, too.

So, when Sparky told me to go take a nap this afternoon because I looked so tired, I went upstairs. I didn’t nap, but I did think about the fact that he’s right. I am tired. So very tired. But I don’t think a nap’s going to cover it.

Bunko Scene

Written By: Michelle - Nov• 02•12

Our bunko group usually dons costumes for our October game. Last year, instead of a traditional costume, I wore my t-shirt that  says, “Careful or you’ll end up in my novel.” This prompted some of my friends to request that I write a scene for the novel with them in it. They gave me details they wanted included and I dutifully wrote them down on my scoresheet. I wrote the scene, too. Unfortunately, I was trying out this writing program called Write or Die that had just come out for the iPad and it had a glitch: it ate the scene.

That was last November. I kept thinking I would recreate the scene, even kept the scoresheet on the bulletin board by my desk, but just never did it. Until today.

So here it is, girls. Please keep in mind that these characters are not you guys, they just have your first names and the attributes you requested. Well, most of the attributes – I kind of lost the scoresheet along the way, so they’re the attributes I could remember. Anyway, they say nothing at all about what I think of you. Also, this is a very rough draft. The idea of writing 50,000 words in 30 days is to write faster than your inner editor can read, so she doesn’t get a chance to shut you down before you can get it on the page. It’s supposed to be crap because it’s about quantity, not quality.

Just for reference, this scene takes place almost 20 years before the book starts. Samantha is the heroine of the book and her best friend, Kaylee, will have her own book later. So…here’s what came out of my head today:

__________________________________________________________________________________

Sam walked out of her room to find Kaylee lying on the floor in front of the stair railing, peering through the slits into the dining room below. They had done this all the time as kids; spying on her mother’s bunko group to hear the latest gossip tossed about by the grownups. At thirteen, though, Sam felt they really should be beyond this sort of thing. They had their own gossiping to do. In fact, their parents should be devising ways to spy on them, not the other way around.

She kicked Kaylee’s foot to get her attention. Kaylee didn’t move, so Sam kicked her again. Kaylee responded by kicking Sam in the shin. Sam moved forward and kicked further up on Kaylee’s leg, causing her to stretch her arm behind her back and waive it wildly at Sam. She sighed and knelt next to her friend, who grabbed her arm and pulled her down out of the line of sight of the living room below.

“Kaylee…” Sam said.

“Shhhhh,” Kaylee said, her face contorted with irritation. Sam started to laugh, but stopped short when she realized Kaylee’s mother’s voice was among those drifting up from downstairs. Which was weird because she wasn’t supposed to return from Central America for another two months.

“Did she change her…”

“I don’t know.” Kaylee said, her eyes fixed on the room below.

“But when did she…”

“I don’t know,” Kaylee finally turned to look at Sam. “I didn’t even know she was home.”

“Oh.”

“Yeah.”

“Okay.” Both girls turned back to the scene downstairs. There were four women at the table, drinking wine and rolling dice, talking and making marks on their score cards. One of them, Michelle (Anton’s wife) Pyzik, was fidgeting with her necklace, rubbing it forcefully between her fingers. Sam knew she was always frustrated with her mom’s insistence on no smoking in the house. Ms. Pyzik, the mayor’s wife, was a chain smoker and often took extended smoke breaks with the woman sitting across from her now, her best friend, Ms.Vicki Frank. Ms. Frank was a science teacher at the high school who was bold enough to be openly gay without concern over losing her job. Sam and Kaylee couldn’t wait to take her class when they got to high school. If she lasted that long, that is. On Ms. Frank’s right was Julie Castille. Thin, red-haired, and pretty with big boobs and an attitude that projected you were a peasant in her kingdom.

And next to Ms. Castille sat Kaylee’s mother, Katherine Finch.  Dr. Finch was a professor of Anthropology at Freiburg University. She spent most of her time on Sabbatical in other countries, most recently Ecuador. Kaylee’s father was gone a lot, too, so Kaylee spent most of her time either at Pyzik’s Coffee Shop or with Sam’s family. Dr. Finch wasn’t due to return for another two months, so her presence tonight couldn’t be a good thing. And the fact that she hadn’t bothered to let her daughter know she was back…well, that wasn’t good either, but it wasn’t out of the ordinary either. Sometimes it seemed to Sam that Dr. Finch had forgotten she had a daughter at all.

A bell in the kitchen rang, which must have been the signal that they were done because Julie Castille stood up and stretched her arms over her head, exposing her midriff…and the stud in her bellybutton. Kaylee and Sam looked at each other with raised eyebrows. Sam suppressed a giggle. More women began to drift in from other rooms. Sam could see Sister Mary Eunice, formerly Shawn Loveland, sorting through half sheets of paper while tapping away on a calculator. Tallying scores, she guessed. Kaylee nudged Sam’s shoulder and nodded toward the nun. “When did she come back from the convent?”

Sam shrugged, “I didn’t know  they were allowed to come back.” Her mother had grown up with Shawn, even made her godmother to Sam’s brother, but communication between them had stopped since she took orders a few years before. At least Sam thought it had, but maybe she was wrong because that was certainly her mother she saw serving pineapple upside down cake to Sister Mary Eunice.

After a few moments, the nun stood up and cleared her throat. At least Sam thought she saw her clear her throat. She couldn’t actually hear anything because the din from various conversations didn’t waver at all. The sister’s brow furrowed and she said something that looked like “Excuse me.” If anything, the noise got louder when Michelle Pyzik let out a guffaw and slapped Ms. Frank’s back. Some of the red wine that spewed out of her mouth landed on Sam’s mother’s best linen table cloth. Ha! Sam thought, happy that she wouldn’t have to take the blame for that one, as Julie Castille had seen it, too. Although, at that moment, Ms. Castille seemed more concerned with the wine that had landed on her white blouse. Sam didn’t know what she was so upset about; the blouse was obviously tailored to be just tight enough to accentuate the enormous new breasts her husband had bought for her and the arrow shape the wine stain made pointed right to them, seeming, to Sam anyway, only to enhance the effect. Nevertheless, Sam’s mom scurried off for some towels and club soda while Julie Frank apologized profusely and Michelle Pyzik daubed at Julie Castille’s breast with a napkin.

After things had settled down a bit, Sister Mary Eunice resumed her efforts to get everyone’s attention. The look on her face reminded Sam of when Shawn would babysit her years ago and Sam would mess around too much in an effort to postpone going to bed. Shawn would put up with it good naturedly for a while, but when she got that particular look Sam always knew the stalling had come to an end. Just then Sister Mary Eunice half shouted, “So do you guys want prizes or what?”

Sam would have been cowering under a table, but the women just laughed and gathered around her, some settling on the couch and some in chairs that had been brought into the room. Julie Castille had changed into one of Sam’s mother’s shirts. It was too big for her thin frame, but the beautiful royal blue made such a dramatic contrast with her crimson hair that Sam caught her breath. She was even more striking this way than in her own clothes, which seemed to suggest she was trying to hard. She looked more relaxed, too. But, then, who could really relax in clothes as tight as the ones she usually wore? She was relaxed enough now to sit near Vicki Frank and Michelle Pyzik anyway. Or maybe she just didn’t mind if Sam’s mother’s shirt got stained. It looked as if Vicki Frank had switched to water anyway. Or vodka, which might explain why she was sitting so close to Michelle Pyzik and giggling. Ms. Pyzik reached behind her and patted her back, much more gently now, and Ms. Frank smiled up at her. Then they both turned toward the sister to receive their prizes.

Through all of this, Kaylee’s mother sat back and seemed to observe the room. Sam guessed that was some sort of occupational hazard; the woman was a world-renowned anthropologist. Studying people, making observations about their interactions, was what she did for a living. She observed people. Tribal people and city dwellers. Friends getting together; husbands and wives; fathers and sons; mothers and daughters. Mothers and daughters. All kinds of people in all kind of places, near and far. People everywhere. Except the person directly above her at that moment. The one observing her.

Halloween with the Fab Four, Autism-Style

Written By: Michelle - Nov• 01•12

I shouldn’t be writing this. I should be hard at work on my novel, as November 1 is the start of National Novel Writing Month. But Zoo Keeper just came home from school and, after reminding him to go straight to the potty when he got inside, peed in his pants managing to also soak his shoes and the floor. At least he was in the bathroom.

There’s no chocolate in my current diet, so I have decided to write this blog in lieu of screaming. And so I offer you details of Halloween at our house in 2012.

♣  8:40 am: Sparky and Zoo Keeper leave the house to walk to school. Zoo Keeper wears his Agent P costume (without the hat and duck bill) over his regular clothes as requested by his school. Yes, things happened before then, but I don’t remember what they were.

♣  9:05 am: Sparky returns to grab his breakfast and leave for work, reminding me that I’m already late to run my first errand before taking BamBam to speech therapy.

♣  9:25 am: Arrive at BamBam’s school to pick up his Halloween costume that was accidentally left behind yesterday. I mumble something under my breath about the fact that I couldn’t even get him to put it on for the Halloween party at school, and then move on because I don’t have time to dwell. Anymore. I text BamBam’s teacher to let her know we’re here.

♣  9:27 am:  Both of BamBam’s teachers come out to say hello. His fabulous special ed teacher compliments my costume (red shirt with the Star Trek insignia) and says to the other teacher, “She’s a super nerd, like me.” This is the ultimate compliment from a very cool lady. I heart her, but then, you all know that already.

♣  10:03 am: Arrive late for 10am speech therapy session. SLP is awesome, though, so it’s fine.

♣  11:10 am: Decide to take the cookies by my friend’s house after I pick up the candy.

♣  11:20 am: Pull into the grocery store parking lot and see that they also have cheap gas, so decide to get some on the way out. Drag a screaming BamBam from the car and into the store, past the grown man in a dog suit standing next to his un-costumed friend.

♣  11:30 am: Realize the man in dog suit was dressed as Willard and laugh.

♣  12:30 pm: Arrive home after dropping off cookies and realize I’m late getting dinner started. Sparky and I have both given up sugar, so we decided to have chili to keep some sort of normalcy. Thing is, the diet-approved chili needs to simmer for two hours and we’re supposed to eat at 5:00 and I have to go pick Zoo Keeper up at 2:00! Make lunch for BamBam and then start prepping like a mad woman.

♣  1:40 pm: Onions are cooked and garlic is minced, but don’t have time to brown the ground beef before leaving to get ZK, so I take the onions off the fire. Realize I haven’t eaten lunch yet.

♣  1:50 pm: Finish making my lunch (omelette with spinach and spaghetti squash), but no time to eat it before leaving the house. Coax BamBam into his shoes and leave for Zoo Keeper’s school.

♣  2:02 pm: Walk Zoo Keeper to car while noting he still has his costume pants on over his regular pants, but don’t ask him why.

♣  2:15 pm: As I take my first bite of my cold omelete, I hear screams coming from the bathroom. Turns out Zoo Keeper has peed all over both sets of pants. And on the step stool. And it’s seeped inside the step stool. And onto the rug in front of the sink. At least he took his shoes off first, I guess. I hear the phone ring as I clean up and take the clothes and boy upstairs for a bath. I throw the clothes in the washing machine with a prayer that I remember to put the costume pants in the dryer so they’ll be ready in time to leave for BC Maven’s house for trick-or-treating.

♣  2:30 pm: I come back downstairs to find BamBam calling out to my mother, which I take to mean she was the one who called and he’s responding to her message on the machine. I listen to the message and call her back to answer her question. BamBam is still calling her name, so I put it on speaker and let him talk to her while I eat my lunch and finish the chili.

♣ 4:30 pm: Sparky arrives home, prompting me to realize I never put Zoo Keeper’s costume pants in the dryer. He does it for me while I finish getting dinner ready for the kids.

♣  5:20 pm:  Sparky and I have managed to eat a few bites of dinner, get everybody into their costumes, take pictures of the kids, and are now in the car. Sparky is dressed as Dr. Doofenschmirtz and I only just realized that I forgot to get any pictures of him! Doh! Well, here are pictures of the kids:

Showing off the platypus tail that Sparky made.

Agent P and Super Grover!

Once again, Agent P and Super Grover!

♣ 6:00 pm: Friends are all assembled and we’re ready to set off on our adventure. We stop for some pictures first:

Cookie took this picture.

I especially like this pic because it looks like Cookie’s son, aka Captain Hook, has a glass eye.

See Zoo Keeper with that thing in his mouth? Remember that.

♣ 6:04 pm: I see that Zoo Keepers mouth is glowing and realize he has chewed through his glow necklace. Oh well, it’s probably not toxic. Much. On to trick-or-treating!

♣ 6:10 pm: We reach a house with a basket of treats out front. I tell BamBam to take one. He picks up the whole basket. He’s definitely my kid.

♣ 6:35 pm: BamBam begins to sternly admonish door openers, “I want TWO candies!” My pride wavers.

♣ 6:39 pm: Zoo Keeper requests to hold my hand as we walk because “I like you.” The other mothers awwww appropriately.

♣ 6:43 pm: We’re passed by a group of trick-or-treaters including a very cute Elmo.

♣ 6:45 pm: I look around and realize I don’t see BamBam. I call out to our group, which is spread out in front and in back of Zoo Keeper and me, asking if BamBam is with anyone. Someone shouts that he’s in the group ahead, but the group ahead says he’s not. Sparky is in the group behind and confirms he’s not there either. We see that the other group of trick-or-treaters, the one with the Elmo, has moved a few houses down the street. BamBam loves all things Sesame Street, so I believe he has followed Elmo in the darkness. I try to run, but Zoo Keeper is planted in place and will not release my hand. So it is Sparky who runs down the street to check. The seconds feel like hours, but finally he shouts that he has BamBam. Cookie asks if my heart is going to beat out of my chest. I realize it’s not, at which point I become almost thankful for Zoo Keeper’s accident in the bathroom because it’s what led me to take some anti-anxiety meds before we left the house.

♣ 6:55 pm: BamBam begins to scream at the doors that no one opens.

♣ 7:00 pm: Back at BC Maven’s house, the kids eat some candy while the grown-ups continue to chat a bit. BC Maven’s daughter shows us her new big girl bed she is so proud to sleep in. She should be, it’s quite fabulous.

♣ 7:18 pm: BamBam, who is playing by himself upstairs, begins to scream at the mere mention of leaving. I go through the common steps to get him to cooperate, but he’s having none of it. I end up throwing him over my shoulder and carrying him down to put his shoes on. He screams through it all, even all the way out to the car.

You know, despite accidents and screaming and losing children, all-in-all it was a pretty good Halloween. Good friends are priceless and these are among the best. I’m including Sparky in that, by the way.

P.S. If I used this blog in my word count for NaNo, I would have surpassed my goal of 1667 words for today by writing 1725 words. Sadly, only 281 of those words were actually for the novel.

P.P.S. AND I MADE IT THROUGH WITHOUT CHOCOLATE! Yay!!